UPDATE: Thank you for helping us raise $1365 for pain researchBelow: The Pain Revolution riders stop in to Queenscliff Gallery & Workshop to visit Soula & Theo.It was a quick visit as they sped through Queenscliff from Geelong on their way to Gippsland via the ferry during the Outreach Tour. Full [...]
Resources for Living with Pain The International Association for the Study of Pain (IASP) A listing of resources relevant to those living with pain. Note: IASP does not offer patient referrals, and links should not be construed as endorsement. IASP is not responsible for information contained on 3rd-party sites. View resource list [...]
Chronic pain resourcesA summary of online and accessible initiatives and resources PainTrain is a patient-developed, patient-owned system that lets people summarise information about them and their condition and share it with anyone they choose online.It is helpful for people who want to be able to explain their pain journey accurately without having to repeat themselves, keep [...]
In my ongoing digital health research, I came across the Future Health Index 2019 Transforming Healthcare Experiences commissioned by Philips*.The report is full of digital healthcare insights but two points stood out to me: Empowered patients better manage their healthPatients are more likely to use digital health if the data will be shared with their [...]
A wonderful day for our founder yesterday!Soula finally got to meet Lissanthea Taylor (PainChats & Pain Revolution) while Lissanthea was en route to the Ride for Pain in Tasmania. After years of advocating together online, the two were finally able to meet and speak face to face - even enjoy a long lunch!Reminder: there's still time [...]
PAIN RESEARCH – How Much do we Value it? A great deal!! Australia is fortunate to have some pretty incredible people who gain global attention for the work they do. We're not talking a little 'inspo' here, we're talking about people who are leading Australia with their research. The kind of team that every [...]
Australia is fortunate to have some pretty incredible people who gain (and deserve!) global attention for the work they do.We’re not talking a little ‘inspo’ here, we’re talking about people who are leading Australia with their research. The kind of team that every country is watching.Well, PainTrain holds one such incredible [...]
Soula is an event in the spotlight. GP’s, we hope to see you at GPADD18(Article from RACGP June newsletter)Events in the spotlightGPADD18 Conference: Saturday and Sunday 4–5 August 2018The RACGP Victoria Drug and Alcohol Committee invite you to attend the 2018 conference, GPADD18 – Dealing with Addiction. This conference will address some of the most common addictions and [...]
In the upcoming GPADD18 conference, Soula will draw on her communication skills as well as her 11 year patient experience and talk about chronic pain’s perception, and also present her pain management resources.Using her personal chronic pain experience and her creative skills as an artist and graphic designer, Soula created pudendalnerve.com.au [...]
Get the Right CareAlthough in many cases there may be no cure for chronic pain, appropriate management can lead to better health outcomes.It is very important to find a supportive and understanding GP, as they will be your primary point of contact for your pain condition. In collaboration with you, your GP can develop a [...]
